NASS-raj-mahapatra_198x230NASS had a very successful Members’ Day on Saturday 21 June. The afternoon practical sessions which gave Members tasters of Tai Chi , Nordic Walking and Essential Daily Stretches went down particularly well.

NASS Members have elected a new Chairman, Mr Raj Mahapatra

Raj was diagnosed with AS over 20 years ago and in recent years has been an active fundraiser for NASS through his ultra distance challenges. Professionally he has been a lawyer in both the UK and the US and now enjoys working at board level with a variety of different companies, from PR and film through to an international social impact project in Africa.

Give Us Your Views

NICE are reviewing the anti TNF guidelines for ankylosing spondylitis and NASS are asking anyone who lives in England and has axial spondyloarthritis or ankylosing spondylitis to give us their views so we can include them in our submission. ARMA Members may be interested to hear that NICE have now produced a new proforma for MTA submissions from patient organisations. Click through to nass.co.uk/news/give-us-your-views/ to add your views on the guidelines.

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2020Health Research

A new report from 2020Health ‘Ankylosing Spondylitis: Hard to say, hard to see; time to hear’ has been produced. The report focuses on:

  • Application of recommended standards and best practice
  • Need to increase the participation and responsibility of patients, professionals and policy makers in AS care and treatment
  • Need to improve rates of diagnosis
  • Patients are supported with appropriate long-term care and treatment

Huw Irranca-Davies MP, whose personal story is detailed in the report, says that he wants “the Government to help other people with AS, now and in the future, to get the best care so that they can stay active and in work for longer, affording them a good quality of life. That is why I welcome this report by 2020health as it aims to not only raise awareness of AS but also rates of diagnosis and the quality of long term care and treatment patients receive.”

Read more here, or download the report.

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