New HMSA Trustees
The HMSA is pleased to announce the recruitment of three new Trustees to the Board.
Dr Alan Hakim (Chief Medical Advisor to the HMSA), Rob Smith (Fundraising Events Manager) and Donna Wicks (Senior Medical Liaison Officer) are all actively involved in the charity in their current roles.
We believe that their appointments will allow the charity to continue to work hard at developing recognition, services and support for all people with a heritable connective tissue disorder (HCTD). All our Trustees work closely with the staff, volunteers and, most importantly, our members in the charity. They are each responsible for one section of our charity’s work. Contact firstname.lastname@example.org for more information.
We are also pleased to announce that the charity is now a member of the Pain UK alliance and we look forward to working closely with this umbrella organisation on its first anniversary, and with ARMA to represent people with HCTDs.
Family Programme and Big Bash Events
Due to the success of our pilot programme and the high demand we will be running the programme again in Wakefield, Yorkshire on the 26th October.
The HMSA’s Big Bash will also be running at the same time and in the same venue. Professor Bird will be present to speak to us about the diagnosis and management of all the hypermobility syndromes, including Joint Hypermobility Syndrome, Ehlers-Danlos Syndromes (all sub-types), Marfan syndrome etc.
HMSA staff will be facilitating the day which includes pain management, pacing, exercise and the benefits of using our local network of trained support group leaders. Jenny Parris, Education Development Coordinator will be addressing the needs of children in regards to educational settings. Please contact email@example.com for information.
Additional Family Programme dates have been announced on the HMSA website.