EULAR PARE Best Practice Webinars

by Garreth

EULAR has decided to organise a webinar every 3-4 months which will be run by one of the member organisations of EULAR PARE and which will highlight and introduce some of their activities.

You and your colleagues are kindly invited to join us for our second webinar. Everyone is welcome so please spread this information in your organisation!

This second session will be led by the National Rheumatoid Arthritis Society which is a member of ARMA, EULAR’s British member organisation. Ailsa Bosworth, CEO of the organisation, and her colleagues Clare Jacklin and Conn O`Neill will share information around two successful projects:

‘Behind the Smile’

This is a project we did in collaboration with Lilly. It started with a survey entitled ‘RA Matters’ which Lilly wanted to go out to a number of European countries. We worked with Lilly to develop the survey and key results were presented to an audience of NRAS members and volunteers in the UK parliament. As a consequence of this, a further piece of work was done to create a suite of 3 videos under the banner ‘Behind the Smile’ which comprised the story of a woman with RA (Jane) who kept saying ‘I’m fine’, a piece to camera by Prof. Iain McInnes to encourage patients to be open with their team and an NRAS volunteer who commented on Jane’s experience. Jane’s story to date has had over 55,000 views.

HealthCare Champions Awards

At the end of 2016, we held our 5th HealthCare Champions Awards. These awards are to celebrate rheumatology health professions who go ‘above and beyond’ what might be considered ‘normal’ care for their patients. It is open to all our members across the UK to nominate health professionals. After a process of screening the nominations, 13 winning individuals and/or teams (10 in RA and 3 in JIA) were selected by our judging panel and they were invited to an Awards Event in London in the UK parliament along with their nominating patients, to receive their Award from the Prime Minister. There are many layers of benefit in an event like this which we will explain.

The webinar is scheduled for Wednesday, 29 March, 15.00 – 16.00 CET.

The webinar will be held via WEBEX and you will have to register in advance, with the EULAR secretariat to receive your details for joining in advance.

Please let Birte Glüsing ( know by 27 March 2017 at the latest if you would like to participate.

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