This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.

Publicity

Eular_standard_logo--1-First awarded in 1975, the Edgar Stene Prize was created by EULAR in honour of Edgar W Stene. The founder and Secretary-General of the Norwegian Rheumatism Association, Edgar Stene also lived with Ankylosing Spondylitis.

The competition for the Edgar Stene Prize 2016 is currently open for entries on the topic of:

“Living with a rheumatic or musculoskeletal disease (RMD):
How I take action to enjoy life to the full”

The competition invites people to share their personal experiences and their individual coping strategies to ‘live life to the full’ despite being affected by a rheumatic or musculoskeletal disease.
What are your top tips on how to live as independently as possible? How can you actively take control of your life and achieve your goals?

The competition is open to everyone living with an RMD (minimum 16 years of age). Each essay should not exceed 2 pages (A4) and be typewritten in Arial 12 point with single line spacing in Microsoft Word (PDFs will not be accepted). The deadline for submitting essays to the ARMA office is 31st December 2015.
Please submit the essays to projects@arma.uk.net. For the detailed prize rules, and to read the entries from the 2015 competition, see here.

As the UK’s member organisation of EULAR -PARE we will appoint a judging panel to decide upon the one essay we will submit to the competition on behalf of the UK. Please let us know if you would like to be part of the judging panel by emailing projects@arma.uk.net by 31st December 2015.
The overall Stene Prize winner will be announced by 15th March 2016.

The Stene Prize winner will be awarded a prize of € 1,000 and will be invited to attend the Opening Plenary Session of the EULAR Congress in London (June 2016). All travel and accommodation will be provided. The runner up will be awarded €700 and the essay in third place will win €300.

Visit the EULAR website for more information.

movie-posterFibromyalgia Action UK Chair Pam Stewart and Executive Officer Ella Vine have recently watched the premiere of “Sonata pera Violoncel” (“Sonata for Cello”), a breathtaking film about living with fibromyalgia.

It is a fictional story of a world-renowned cellist, who in her midlife developed fibromyalgia. The condition made it impossible for her to continue to play; it was a story of a daily struggle between the physical and emotional pain of not being able to do what she wants to do and a strong will to continue to play regardless of the pain. Playing the cello is for the cellist everything; a mission, a vocation, a passion, a sole purpose of her life. It is her life.

In the film we watch how fibromyalgia takes away everything she loves and cares about. We watch how it takes away her life and we admire her heroic struggle to take her life back and to win with the condition. This film has captured in a very artistic and moving way the invisible struggle everyone living with fibromyalgia takes up every day. It is also a captivating story about love, passion and sacrifice.

Pam and Ella have met with the filmmakers, director Anna Bofarull and producer Marian Matachana, both from Spain, and talked about how to help to help make this film available in the UK. The story behind making this film happen is also fascinating. Anna’s mother has fibromyalgia and Anna wanted to show to the world the reality of this condition. Marian has fibromyalgia. It took them 5 years to raise funds and develop the film, which is being screened in other countries. The film will be screened during Film Festival in Chichester later this year.

Fibromyalgia Action UK is now seeking funding and working towards making this film available in the UK to raise awareness about fibromyalgia and living with the condition.

FibroAction and FMA UK are merged into Fibromyalgia Action UK

We have exciting news – FibroAction has merged with Fibromyalgia Association (FMA UK) and a new organisation Fibromyalgia Action UK was created as a result of the merger. The new charity will continue the work of FibroAction and FMA UK and will be speaking with a stronger voice for people affected by fibromyalgia.

We want to use these sunny summer months to spread the message about the new merged organisation and to raise awareness about fibromyalgia at all levels, everywhere in the country. To do that, we need you. Whether it is talking about fibromyalgia with your friends and neighbours, your GP or your MP, getting involved with your local support group (we can put you in touch with one – please visit our website for more information) or undertaking one of the many summer fun challenges – from walks, runs, cycle and other events, which are taking place nationally, there are many opportunities for involvement this summer for everyone.

Why not get your family and friends involved in doing something fun and memorable, like themed summer garden party, playing football in giant bubbles, clothes swishing or a walk to discover hidden natural treasures in your local area? Regardless of what you decide to do, we are here to support you along the way with friendly advice, t-shirts, running vests, wristbands, leaflets to help you raise awareness about this common, but not well understood condition. You can also sign up with JustGiving and start fundraising and awareness raising in a matter of a few clicks! Regardless of what you will decide to do, we wish you lots of fun.
Fibromyalgia Action UK Team
Website: www.fmauk.org

Fibromyalgia Awareness Week, 6 – 12 September

This year we will continue to raise awareness about fibromyalgia during Awareness Week. We will celebrate it with cakes and will encourage everybody to bake (or to cheat a little and to buy) a cake or cupcakes and share with family, friends and colleagues. These will be special cakes – with our new logo (coming soon) of a yellow butterfly with dots. We will provide help and information on our website about how to get the butterfly on your cakes or cupcakes. We hope that everybody will get involved with this delicious way of doing good!

Raising awareness about fibromyalgia amongst parliamentarians

We continue to raise awareness about fibromyalgia amongst parliamentarians. We attended parliamentary events on musculoskeletal conditions and talked about fibromyalgia to interested MPs and members of the House of Lords. Pam and Ella have also attended a recent debate about fibromyalgia in Westminster Hall, which raised important issues about better awareness and better care for those affected by fibromyalgia. If you would like to get involved locally with your MP, please get in touch.

bright-one-squareBright One is a volunteer run communications agency for the third sector and Lynn Levy, our outgoing project co-ordinator, works as partnerships manager for this special organisation. Bright One’s vision is that all charities and not for profit organisations, even the small ones, should have access to quality communications. Its team of volunteers can help with strategy, branding, digital and PR at little or no cost and unlike other agencies, all Bright One profits are reinvested to develop volunteers’ skillsets.

Bright One provides opportunities in all shapes and sizes, allowing charities to be involved, regardless of capacity and budget, and focus on what they’re best at: their mission.

• Bright works services bursaries – Bright One assembles teams of two to four volunteers overseen by an account manager to tackle larger scale projects in one of four areas: creative, strategy, PR and digital.

• Bright sized micro-volunteering – for smaller less labour intensive projects, e.g. if you need someone to write a press release, cast an eye over your digital strategy or someone to design a flashy banner ad. If the project takes up to four hours you can post it to our Bright Sized Micro Volunteering board.

• Bright wise capacity-building workshops – for building expertise within your organisation. A Bright One guru can lead a half or full day workshop in one of four areas: creative, strategy, PR and digital.

Please check out the Bright One website if you would like to learn more.

I wish you all the best for the future.
Kind regards, Lynn

Lynn Levy
Project Coordinator