This is a category taken from the full feed of Musculoskeletal and Arthritis news provided by ARMA's members.
  • The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. We have 33 member organisations ranging from specialised support groups for rare diseases to major research charities and national professional bodies.

EULAR

IMplementation of Physical Activity into routine Clinical pracTice in Rheumatic Musculoskeletal Disease

The IMPACT-RMD study aims to raise awareness on the importance of physical activity in people with Rheumatic and Musculoskeletal Diseases (RMDs). The goal is to help and support managing healthcare practitioners to understand more about physical activity as well as incorporate/include physical activity advice in clinical consultations.

Physical activity has multiple different benefits for RMDs, including better quality of life, better fitness and sleep, less fatigue and pain while it can also reduce inflammation. We believe it is necessary that alongside medication, physical activity is used to better manage symptoms.

There is a team comprised of research experts and patient organizations from across seven countries, with support from the European League Against Rheumatism (EULAR) and the EULAR People with Arthritis and Rheumatism (PARE) organizations.

You are invited to participate in the study by filling-in the survey questionnaire.

The is survey, which takes no more than 10-15 minutes to complete, requests information on symptoms and the affect the have every day, as well as questions on physical activity.

Your feedback is important to us and will be used to develop a proposal and recommendations on specific interventions that will be centred on the patients’ needs.

Participation is entirely voluntary. The IMPACT-RMD has also developed the questionnaire in such a way that all the data you provide are anonymous. There are no correct or wrong answers, since your personal view on the topic is requested.

This project will provide useful information that will improve significantly clinical management and disease symptoms for RMDs. Email any questions directly to the principal investigator: g.metsios@wlv.ac.uk or the researchers that will be responsible for the data collection and analyses: tzika.aik@gmail.com and pvitalis1987@gmail.com  

Exploring the perspectives of young patients with chronic, inflammatory arthritis on patient-reported outcome measures

Having completed Phase 1 of the YoungPro project (focus groups in four different European countries with young people with inflammatory arthritis and the first Task Force meeting), EULAR has developed a survey to be spread across Europe to gather additional information around this topic.

The European League Against Rheumatism Task Force aims to incorporate the perspective of young people with inflammatory arthritis in patient reported outcomes (PROs). To reach this goal, we intended to identify common themes that are important to young people with inflammatory arthritis and to explore if they are covered by the most commonly used PROs. Questionnaires and rating scales are referred to as patient‐reported outcome measures and are completed by patients to reflect their individual perspective. They have become an integral part in assessing disease activity and the impact of disease on individuals and by that influencing treatment decisions, ideally taken together between the patient and the physician.

The study team consists of international rheumatology researchers, health professionals and patient research partners. Currently used patient-reported outcome measures (such as those looking at pain, fatigue and physical functioning) may not capture everything that matters to young people with arthritis.

For this reason, the survey is designed for young people (aged 18 to 35 years) with inflammatory arthritis (including juvenile idiopathic arthritis, rheumatoid arthritis, psoriatic arthritis, spondyloarthritis, ankylosing spondylitis and Still’s disease). Those having been diagnosed with one of these conditions are welcome to take part in the survey. Those above the age of 35 are also welcome to take part in this survey. This information will then be compared to the younger age group.

This survey consists of two parts:

  1. A section asking general questions about you and your health;
  2. A second part, asking about personal experiences with patient‐reported outcome measures.

In order to maximise the reach and overcome the language barrier, the survey was translated in 7 languages (English, German, French, Spanish, Portuguese, Italian and Russian).

It takes about 15 minutes to complete the survey and EULAR is sincerely thankful for your support in spreading the survey to reach as many people as possible!

Find the questionnaire here: www.soscisurvey.de/youngpro/

One strategy, a learning management system, five recommendations, 12 campaign sponsorships and a first – and a tenth – anniversary

The European League Against Rheumatism, EULAR, is celebrating a year of achievement in rheumatology in 2018. EULAR launched its new five-year strategy as well as the EULAR School learning management system. It also published five recommendations, sponsored twelve countries in Europe to launch the EULAR Campaign, “Don’t Delay, Connect Today” at local level – and commemorated the first anniversary of the campaign with a dedicated press conference. 2018 also marked ten years since the People with Arthritis and Rheumatism in Europe were integrated into the EULAR network, becoming one of the three pillars.

The EULAR Congress in Amsterdam, which received a record-breaking number of abstract submissions (5,090) in 2018, hosted the launch of the EULAR Strategy 2018-2023, as well as the launch of the EULAR School online learning management system (LMS).

The strategy is the third strategic cycle in developing excellence in rheumatology in six areas of focus: Education, the annual congress, quality of care, research, advocacy and the internal organisation of EULAR. It is designed to further enhance the excellent standards and activities established and led by EULAR across the field of rheumatology.

The learning management system from the EULAR School is accessible to individuals across the scientific, health professional and patient audience spectrum around the world and provides round-the-clock access to the highest-quality – and the most innovative content – in the area of rheumatology.

EULAR also published five recommendations during 2018. These included recommendations in the management of hand osteoarthritis; the effect of exercise and physical activity promotion in people with rheumatoid arthritis, spondylarthrosis and osteoarthritis; health professional approaches to pain management in inflammatory arthritis and osteoarthritis; the management of Behçet’s syndrome and the use of imaging in large vessel vasculitis in clinical practice.

The sponsorship of twelve countries to implement the EULAR Campaign, Don’t Delay, Connect Today, was started in January 2018 and the campaign’s first anniversary was marked with a dedicated press conference held at the EULAR Congress in Amsterdam in June. The international awareness day, World Arthritis Day, was celebrated around the world on 12 October, with EULAR marking the day with a dedicated video that reached over half a million people.

2018 also marked ten years since the EULAR pillar, People with Arthritis and Rheumatism in Europe (PARE), was integrated into the network.

Looking to 2019, Professor Hans Bijlsma, EULAR President, says, “I would like to extend my personal thanks to all those in the EULAR network and beyond who have contributed to this milestone year in rheumatology. Let us all unite and go forward into the future in fighting rheumatic and musculoskeletal diseases – together, we can contribute to a healthier world.”

There are only a few days left to apply for the prestigious EULAR Edgar Stene Prize Competition 2019. People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:

My ideal employer – Work without barriers for people with RMDs

Please find more information in these documents:

Please take a careful look at the deadlines and entry rules mentioned in the respective documents. The deadline for UK entries is Tuesday 11 December 2018, entries should be sent to projects@arma.uk.net by that date.

As with previous years, the national winning essays will be accepted in their native language and the EULAR Secretariat will take care of translating them into English.

EULAR looks forward again to receiving many inspiring and encouraging essays from all over Europe!

On 6 September 2018, The European League Against Rheumatism (EULAR) published an update to a set of recommendations for the management of hand osteoarthritis. The recommendations report on new evidence made since a first EULAR report was published in 2007.

See the press release (opens in PDF) for the five overarching principles and ten recommendations that were agreed upon in the EULAR document.

On behalf of Nele Caeyers, Chair of the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (PARE); Dieter Wiek, EULAR Vice President, representing PARE; and Polina Pchelnikova, Working Group leader of the Edgar Stene Prize; the EULAR secretariat is delighted to announce the call for entries for the Edgar Stene Prize Competition 2019.

People with rheumatic and musculoskeletal disorders are invited to write about their personal experiences submitting essays on the topic of:

“My ideal employer – Work without barriers for people with RMDs”

Please find more information in the attached documents [both PDFs]:

Please take a careful look at the deadlines and entry rules mentioned in the respective documents. The deadline for UK entries is Tuesday 11 December 2018, entries should be sent to projects@arma.uk.net by that date.

As with previous years, the national winning essays will be accepted in their native language and the EULAR Secretariat will take care of translating them into English.

EULAR looks forward again to receiving many inspiring and encouraging essays from all over Europe!

The EULAR PARE Editorial Board need your input regarding their publications, in order to assess their impact and value. They are looking for one person per organisation to give feedback on their e-Breakthrough newsletter and the hard copy, Breakthrough.

It would help them if you could fill out a short online survey by 30 July at the latest.

EULAR sends thanks in advance for your kind support!

EMEUNET (the Emerging Eular NETwork) and the EULAR School of Rheumatology have launched an online educational initiative called Twitter Journal Club, facilitated by experienced rheumatologists. The aim is to allow Twitter users to participate in a discussion with colleagues around the world about recent key papers in rheumatology.

Each month details of the article selected for the Journal Club as well as the EMEUNET paper of the month will be available for download on our the EMEUNET websiteYou can also have a look at the previous Journal Club sessions.

Survey: Social Media for health-related purposes

You are invited to participate in a research study titled “Understanding how people with rheumatic and musculoskeletal diseases (RMDs) use social media for health-related purposes.”  This study is being undertaken by a team of international researchers and patient research partners.

Social media has been gaining increasing momentum in recent years and is used by different groups to stay up to date or exchange information. Social media tools are easily accessible and independent of geographical location. Therefore, social media also provides people with chronic conditions, such as rheumatic and musculoskeletal diseases (RMDs), with new opportunities to identify information about their condition(s) and treatment(s), as well as the ability to connect with other patients, carers, patient organisations and healthcare professionals. However, despite the premise of social media for people with RMDs, it is less clear how and why people with RMDs use social media in relation to their health and wellbeing.

You can read the project summary here [in PDF] and take part in the survey via this link.