…in Rare Rheumatic and Musculoskeletal diseases
Earlier this month BSR launched report setting out a programme of work to enhance the care for people with rare rheumatic and musculoskeletal conditions.
The report comes at an important time for rare diseases. Two years on from the launch of the UK Rare Disease Strategy, much of the focus has been on Genomics and the 80% of all rare diseases that have a genetic origin. However, BSR believes that greater priority should be given to the non-hereditary rare conditions, of which the rare inflammatory and autoimmune diseases are a very important component. These related conditions include ANCA Associated Vasculitis (AAV), Lupus and Scleroderma. People living with these conditions report delays in diagnosing and treating their condition of up to 7 years. During this time their health may deteriorate with risk of permanent disability, organ failure, or even death. For example, 1 in 6 people diagnosed with AAV are likely to die within a year of diagnosis.
Download the report which offers a first step in delivering a co-ordinated response to the needs of people living with these conditions.
BHPR Educational Bursary
Further your education in rheumatology by applying for the BHPR educational bursary.
Applications will be judged anonymously and independently by a panel nominated by BHPR. Judges will reach a consensus on the applications and awards will be made to the applicants thought to benefit most.
Applications close on 4th June 2016.
Two new draft guidelines open for consultation
As part of our NICE accredited guidelines process, draft BSR clinical guidelines are open for public consultation.
The two new guidelines open are:
Please email Chris Hiley, Research Project Manager by 16 June 2016 with your response.
National clinical audit for rheumatoid and early inflammatory arthritis
BSR would like to invite you to attend the launch of our second annual report on 25 July 2016 at the King’s Fund in London.
The launch will be a breakfast event presenting the key findings, sharing best practice and discussing the future of the project from 8:30am – 10am.
Please confirm your interest in attending by 24 June 2016 to Rose David, Project Support Officer. Places will be allocated on a first-come-first-served basis and we are unable to cover any expenses.
Join the Standards, Audit and Guidelines Working Group, a subcommittee of BSR’s Clinical Affairs Committee. This is a good opportunity to influence practice and improve standards of care in UK Rheumatology.
Apply online here before 09 June 2016.
Submit your proposal for Rheumatology 2017
Plans for Rheumatology 2017 are underway!
We’re now inviting session proposals for Rheumatology 2017.
Submit yours online and help shape the UK’s definitive rheumatology event.
The deadline for submitting is 03 June 2016.
Submit your abstracts for the Autumn conference
Four topics have been confirmed:
- Raynaud’s disease – Convened by Prof Ariane Herrick
- Spondyloarthropthies – Convened by Prof Walter Maksymowych
- Vasculitis – Convened by Dr David Jayne
- Infection and arthritis – Convened by Prof Robert Moots
Abstract submissions close 05 June 2016, submit yours now!