Mid-November saw the second International Symposium on polymyalgia rheumatica and giant cell arteritis, this time in Southend. Seventy researching clinicians came together to share their latest projects and four patient representatives took part on (almost!) equal terms. It was so interesting to see how the science is confirming that PMR is a form of vasculitis, and beginning to solve the mystery of the overlap between PMR and GCA.
Meanwhile, PMRGCAuk is delighted that a sight research charity is funding two small ...
PIP is the new benefit that is replacing DLA. All DLA claimants aged 16 – 64 will eventually be re-assessed to see if they qualify for PIP. Under the new rules, if a claimant can walk more than just 20 meters they will no longer qualify for the higher rate of the mobility component of PIP. This would mean they would no longer qualify for a vehicle under the Motability scheme.
There are also big concerns about how people are assessed. For example, ...
This service, which includes acupuncture, has just been published in the BMC Complementary & Alternative Medicine journal. The purpose of the service evaluation was to report patient outcomes and experiences of the Beating Back Pain Service (BBPS), a pilot service based in a primary and community care setting, delivering acupuncture, self-management and information to patients with chronic low back pain.
Visit biomedcentral for the open access article, where you can read the background, methods and results of the research.
Conference held at EU Parliament & Thon Hotel EU, Brussels, 17th October 2013
Eumusc.net is a project initiated by EULAR and undertaken with the support of the European Commission. For the first time, thanks to the methods and tools developed with this initiative, it will be possible to assess, monitor and benchmark the burden of Rheumatic musculoskeletal diseases (RMDs) as well as the quality of care that people with RMDs receive in EU countries. This information will allow countries to set ...
HMSA Trustee to Pain UK
Donna Wicks, trustee for Hypermobility Syndromes Association, has been appointed to trustee for Pain UK an umbrella group for smaller organisations who want a voice in pain services and policy at all levels. Donna feels that this role will in fact complement her current role with the HMSA, as people with hypermobility syndromes suffer from chronic pain which is not recognised as an issue in its own right. Donna is looking forward to representing Pain UK ...
Wednesday 25th June 2014 – The Mountbatten Centre, Portsmouth.
ARMA Portmouth, Portsmouth Hospitals and the National Osteoporosis Society would like to invite you to have a free exhibition stand/ table to promote the work of your organisation/ charity.
For the exhibition, stand holders will be provided with:
Table and 2 chairs
Refreshments and lunch
Set up time will be from 08:00-09:00 with the doors opening to the public at 9 am
Stand holders are encouraged to attend any of the lectures being ...
Of non-communicable diseases in the EU and EFTA countries, musculoskeletal disorders now show the largest increase on the health of people, and account for almost 30% of all disability.
This is according to the EU and EFTA Regional Results (released November 13th 2013) from the Global Burden of Disease 2010 study. It shows that there has been an increase in NCDs for the EU and EFTA countries from 83.31% in 1990 to 86.14% in 2010, measured by DALYs.
Read the full EU ...
The Discover Arthritis Research UK Scotland Information Day 2013, Edinburgh23 November 2013
Come along to the information day and learn more about the charity’s research and work in Scotland. There will be talks and presentations in the morning from lead researchers and the charity’s Chief Executive Officer, Dr Liam O’Toole.
Topics will include:
Auto immune conditions
Juvenile Arthritis (JIA)
There will be a buffet lunch and the opportunity to meet and talk with others concerned with arthritis. Find out how you could play a ...
As part of this year's ARMA AGM, our guest lecturer was Dr Partha Kar, Clinical Director of Diabetes at Portsmouth Hospital NHS Trust since 2009, and pioneer of the award-winning Super Six model.
One of his main areas of passion is improving patient outcomes through the redesign of diabetes care to be more integrated over primary and secondary care.
He spoke to us about the Super Six model and how he has gone about redesigning diabetes care in Portsmouth: managing CCGs, targets ...
Standards of Care
Arthritis and related musculoskeletal conditions affect one in 5 people in the UK, causing pain and disability.
They can strike at any age, from infancy onwards. They cost society billions each year in health and social costs, lost employment, benefits; and they cost many individuals their independence and quality of life. There are many myths about these conditions, but the most damaging of all is the myth that nothing can be done.
Something can always be done, be it providing details of a local support group, or designing a service which means that people see the right specialist at the right time.
As part of ARMA’s Standards of Care project, a group of people with a range of musculoskeletal conditions has come together to identify what needs to happen in health services to enable them to minimise the pain and disability of arthritis, and to help people remain independent. They have suggested reasonable expectations of care and services for all people with musculoskeletal conditions.
We believe people have a right to:
Access to appropriate services for all people with musculoskeletal conditions
Timely diagnosis and treatment
Services which are centered on the needs of users
Independence and self-determination
Read more about our overarching principles for the standards of care for people with musculoskeletal conditions.