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World Summit 2014

KEEP PEOPLE MOVING”

This high-level international meeting provides a forum for leadership and key opinion leaders from professional, scientific and patient organisations relevant to musculoskeletal health, together with policy makers including from WHO and the EU.

Visit the Summit page for the programme and registration form.

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for the 2015 General Election

Explore our interactive 6-point plan

As the UK population ages and the number of people living with multiple long-term conditions grow, the burden of MSK conditions is set to increase. The last six years alone have seen an increase of nearly 300% in hip and knee replacements, for instance. Yet MSK conditions remain chronically under-prioritised in the NHS.

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ARMA is the umbrella body providing a collective voice for the arthritis and musculoskeletal community in the UK.

Together, ARMA and its member organisations work to improve quality of life for all those living with musculoskeletal (MSK) disorders in the UK.

We aim to foster co-operation between charities and professional organisations, working to enhance understanding and mutual support between individuals and organisational bodies.

Musculoskeletal and Arthritis News

Guest blog – The Ice Bucket Challenge

by Chloe Kastoryano, Project Coordinator, Scleroderma Society Amyotrophic lateral sclerosis (ALS) – a condition very few of us had heard of until recently – is suddenly widely known throughout the world. The ice bucket craze that started in America has swept across the pond and now in the UK we’re doing the same. The globe has united behind the #icebucketchallenge, and different countries have put their stamp on the stunt with their own variants – Gaza, for example, is doing the #RubbleBucketChallenge. The surest sign that the movement has reached a critical mass is that a Wikipedia page has even been created. What started as a campaign to raise ...

Person Centred Care 2020

Calls and contributions from health and social care charities National Voices, the health and care charity coalition, today sets out demands for genuinely person centred care. It warns that services are increasingly fragmented and underfunded, with too little voice for patients and families, and says that fully involving people in decisions is the key to improvement. In Person centred care 2020: Calls and contributions from health and social care charities and in a related letter in The Times today, National Voices members call on the next government to make person-centred care the central ambition for health reform, and to provide consistent leadership, ...

Changes at PSALV and Cross Party Group

The Next Psoriasis and PSA Cross Party Group Meeting in Holyrood is on 24th of September. There is a proposal from Skin Conditions Campaign Scotland to have the purpose of the CPG changed. There was much discussion on this, and it is on the agenda for the next meeting. The new suggested title is “Skin conditions and associated Rheumatic conditions”- (such as PSORIASIS-PSA) PSALV is concerned at loss of Rheumatology input and interest at this, after 4/5 years running as a successful group.   PSALV is dropping its SC0 charity number, due to lack of active Trustees, but will still remain as the ...

Public Health Report & Parliamentary Reception

Public health and musculoskeletal health: Arthritis Research UK recently published the report “Musculoskeletal health: a public health approach”.  It is available from the reports-and-resources section of our website. Please contact us if you would like a printed copy. Parliamentary reception and party conferences:We are holding our annual Parliamentary reception on 15 October, and have invited the Health Secretary to join us.  We will also be meeting with a number of MPs, prospective parliamentary candidates and local councillors at the three party conferences, to discuss our public health report and our manifesto.

Care and support for people with RA and their carers

NRAS has launched a new survey to investigate the experiences of care and support in England for people living with Rheumatoid Arthritis (RA) and their carers. We want to know what types of care and support are needed for people with RA, whether these needs are being met properly, and what patients’ views are about the Care Act 2014 reforms. The results of the survey will eventually be published as a briefing paper. The survey closes at midnight on 09 October. To take part please follow the surveymonkey link.

Meeting with Scottish Government on rheumatology services

ARMA Scotland Chair Steve McBride (Policy Adviser for Arthritis Care) has taken part in a meeting with the Scottish Government Health and Social Care directorate to look at improvements in rheumatology services. The meeting was arranged by the Scottish Society of Rheumatologists in the light of the needs assessment report on RA produced by the Scottish Public Health Network.   Steve writes: “It is now nearly two years since the Scots PHN report came out. It has been well received but there has been little in the way of coordinated government response. The August 26 meeting at St Andrews House certainly put ...

EDS UK 2014 Residential Conference

EDS UK will be holding their 2014 residential conference in Solihull Birmingham October 24th-26th. The conference is open to both patients and medical professionals.   We have an impressive line-up of speakers that will be holding talks on the most up-to-date information about Ehlers-Danlos Syndrome. There will be interactive workshops and opportunities for you to ask questions. Please visit the EDS UK website for more information, tickets and a full line up of speakers.  

The Importance of Web-based Information

One of the issues raised by Vasculitis patients is the lack of information provided when they are told of their condition. With little information or further lack of explanation it is little wonder that patients and their families often become very anxious and distraught. Many people search the internet for an explanation of the condition and often find themselves reading articles that leave them more distressed than when they started their search, especially when the information has been written by non-professionals and the information is years out of date. Knowing this was a common experience for patients and their families, when ...

BSR Autumn Conference Discount

The BSR Autumn Conference 2014 – ARMA members can enjoy a discounted package      This year’s British Society for Rheumatology Autumn Conference takes place in Brighton from 27 - 28 November and will offer delegates the opportunity to network with colleagues from across the UK and hear from world-leading experts on four topics rheumatoid arthritis, crystal arthritis, psoriatic arthritis and vasculitis. Over 90% of attendees to the 2013 conference said they would recommend this event to a colleague and ARMA members can ensure they have a presence at this prominent event with discounted charity pod in the exhibition area, plus a full ...

Spine Selfies for World Spine Day

Every year on October 16th, people from around the world join together to raise awareness on World Spine Day (WSD) as part of the Bone and Joint Decade's Action Week.   To raise awareness on World Spine Day and in accordance with the "Straighten Up and Move" theme, the BJD are asking people to take a photo of their spine and share via social media using #worldspineday, #spineselfie. Photo should be tasteful, creative and help to raise awareness for healthy spine habits. Photos can be shared on the World Spine Day Facebook, Twitter (@World_spine_day) page or via email info@worldspineday.org. Spinal disorders, such as ...

AKU Society to host the 8th International Workshop

The AKU Society will host the 8th International Workshop on AKU on Thursday 16 October at the Hotel Ariadne in Stockholm, Sweden. AKU is an iconic rare form of osteoarthritis, and the days talks will cover basic research explaining new biomarkers for OA, new anatomical structures seen in OA bone, as well as updates on the clinical research investigating new treatments for AKU. After the talks, there will be a tour of Museum Millesgarden, followed by dinner at Hotel Foresta. A full list of speakers and programme of talks is available online from the Society's website. Registration is free. Please contact Anki Kihlberg ...

Chris dresses up for NRAS

For the fourth year in a row Chris Deighton, NRAS Medical Advisor and constant supporter, will once again take on the challenge of the Great North Run for NRAS.  This year Chris will be running the 13.1 mile route dressed as a pub landlord for the day with Helly Berger (NRAS member) in her wheelchair as his buxom barmaid (last year they donned super hero outfits for the day!).  Helly has had JIA from a very early age and has had a number of operations on her joints and yet she shows such courage.  Chris will be pushing Helly in ...

Upcoming BIMM Events 2014/15

27th – 29th Sept         Module 1 - Foundation Course LCOM Boston Place London NW1 6QH This module will cover the essentials of history taking and systematic physical examination of the musculoskeletal system. You will be introduced to the neurophysiology of pain and the relevance of the dysfunction model to understanding the modern epidemic of back pain. You will learn how to assess posture, gait and function and develop your manual skills in diagnosis of soft tissue dysfunction. Through understanding of joint mechanics and physiology you will begin to learn the principles of mobilisation and manipulation. Demonstration of diagnostic technique on clinic patients ...

New Booklet: Lupus and kidney disease

LUPUS UK has just finished production of a new 12-page booklet, ‘Lupus and the Kidneys’. Approximately 1-in-3 people with lupus develop kidney disease, making this an important addition to the range of Information Products offered. The new booklet is available for free by contacting LUPUS UK National Office or by downloading the new kidneys booklet pdf from our website.  

Understanding between Health Board and North Wales ARMA

Betsi Cadwaladr University Health Board and Arthritis and Musculoskeletal Alliance work together to improve services for patients. BCU Health Board and the North Wales ARMA have agreed to work together to strengthen the planning and commissioning of services for chronic musculoskeletal conditions. The partnership was launched at an event at Llandudno Hospital on 31st July. Signing a Memorandum of Understanding between the Health Board and the NW ARMA, Health Board Chairman, Dr. Peter Higson said: “We are delighted to be working with the North Wales Arthritis and Musculoskeletal Alliance to ensure that patients can contribute to the way we design and deliver ...

Portsmouth Osteoporosis Support Group Newsletter Autumn 2014

As you will read in the Portsmouth Osteoporosis Autumn 2014 Newsletter, this has been an exciting year for promoting the National Osteoporosis Society and Queen Alexandra Hospital. Dr Young Min and his team have worked so hard and it is a privilege to be part of this. The Support Group's Autumn Programme opens on September 11th 2014 in Cosham. There have been lots of positive developments over the last few months and the members of our local Portsmouth Osteoporosis Support Group deserve to be congratulated for playing such a huge role in making it all possible. The local group have been raising ...

Portsmouth ARMA events in October 2014

ARMA Network in Portsmouth would like to invite you to 3 upcoming events in October: 4th October 2014 Portsmouth Hospital Open day Queen Alexandra Hospital, Cosham NHS Trust Open Day, Various talks, tours and exhibition stands 10:30am-3:00pm Download the Programme-Fracture-and-orthopaedic-OPD. 15th October 2014 Day to Day Living with Arthritis A Patient and Public Conference at Festival Hall- Petersfield, 9am – 4pm. Read the full programme of events for the Living with Arthritis day. 31st October 2014 Moving On - Arthritis Update Pain and Arthritis- Patient and Public Conference for the Gosport and surrounding area. Please book early to avoid disappointment. You can see details and the full programme of the day's events here.    

Acupuncture Evidence for long term conditions

Date set for AAW 2015 Our next annual Acupuncture Awareness Week is set for 2-8 March 2015. Please mark this date in your calendar and look out for further details to follow. Research update A British Journal of General Practice article in June 2014 on “managing chronic pain in the non-specialist setting” recommended acupuncture for short term relief of pain in patients with chronic low back pain or osteoarthritis. The Parliamentary Health Committee long term conditions report also stated that there is “good evidence that good acupuncture will take away pain in a variety of different conditions”.

Edgar Stene Prize 2015 Launch

On behalf of Diana Skingle, Chair of the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (PARE) and Marios Kouloumas, EULAR Vice President, representing PARE, as well as of the Edgar Stene Prize Jury, we are delighted to send you the call for entries for the Edgar Stene Prize 2015! As in the previous years we are delighted to accept the national winning essays in their native language to the EULAR secretariat, and we will take care of translating the essays into English. The topic is: “Taking control of my life: working together with health professionals to achieve my personal goals" Please read ...

The benefits of work on health and wellbeing

Arthritis Care Scotland’s Joint Working Project coordinator Maureen McAllister was part of a working group to develop a training resource which promotes the benefits of work on health and wellbeing ‘Just The Job’, a new animation launched by NHS Education, highlights the important relationship between work and health and wellbeing. The animation, sponsored by the Scottish Government, is relevant to a diverse range of staff in NHS Scotland, the third sector (not for profit, non-governmental) and other settings. It explains in a nutshell the links between work, health and wellbeing, encourages everyone to be proactive in supporting people with health conditions to ...

LUPUS Factsheets updated to Information Standard

This month LUPUS UK has finished reviewing and updating two of our factsheets, ‘Lupus – Incidence within the Community’ and ‘Lupus and Associated Conditions’. Both of these leaflets have now been brought within the requirements of the Information Standard. The two factsheets are available to view and download, along with the rest of the range at lupusuk.org.uk/factsheets1. Alternatively, physical copies can be requested from LUPUS UK National Office.

BIMM Diary 2014/15

Module 1 - Foundation Course 27th – 29th Sept LCOM Boston Place London NW1 6QH This module will cover the essentials of history taking and systematic physical examination of the musculoskeletal system. You will be introduced to the neurophysiology of pain and the relevance of the dysfunction model to understanding the modern epidemic of back pain. You will learn how to assess posture, gait and function and develop your manual skills in diagnosis of soft tissue dysfunction. Through understanding of joint mechanics and physiology you will begin to learn the principles of mobilisation and manipulation. Demonstration of diagnostic technique on clinic ...

NRAS Welsh Network & Work and Pensions Report on ESA

Launch of NRAS Welsh Campaigns Network NRAS has launched a Welsh Campaigns Network. The network consists of six Welsh Ambassadors from across the country who have been trained up to undertake campaigning work. The new recruits underwent a three-day training programme in Cardiff and Maidenhead in order to prepare for the role. In addition to this, Welsh Ambassadors attended a ‘Meet the Patients’ constituents drop-in event in the Welsh Assembly in June to coincide with RA Awareness Week. The event was kindly sponsored by Chair of the Health and Social Care Committee, David Rees AM. The event was very successful and in ...

NRAS JIA, Tea Party & Sky Dive

RA Awareness Week 2014 We were blown away by the support we received in raising the profile of RA during this year’s awareness week which took place on 16th – 22nd June. Thank you so much to our supporters for their efforts to make RA better understood by the general public, we can’t make a difference without you! We received 78 pieces of media coverage and our poster was published in the Metro on the first day of the week. We had celebrity support from Claire King, Jenny Agutter, Jo Whiley, Craig Revel Horwood, Hazel O’Connor and political support from David ...

Guest Blog - Collaboration and Genuine Innovation

by Maurice Cheng, Chief Executive of The Institute of Osteopathy I’m sitting here on a Sunday morning writing this blog post, having missed the deadline, wondering what I could reflect on that would be interesting for ARMA colleagues. The reason I’m late with this is because we’ve just relaunched the British Osteopathic Association as the Institute of Osteopathy; finally got our phase one new website and branding up this week (dead links, typos and all); finalised our annual convention programme in October and embedded it on an event microsite; published a new format members’ journal; and signed off on an extraordinarily long ...

Sustainable Healthcare report & Health Committee

The British Society for Rheumatology shows support for the Sustainable Healthcare report A new Sustainable Healthcare report led by the College of Medicine, with the support of the British Society for Rheumatology, was launched on Tuesday 17 June. Attended by BSR CEO Laura Guest, the launch took place at the House of Commons. The report makes recommendations on how NHS care can be made more sustainable and help improve outcomes for people living with long-term conditions, including rheumatic conditions. You can read the report online. - - The British Society for Rheumatology supports Health Committee report to provide effective care to those with long-term ...

NHS Procurement Atlas of Variation

The NHS Procurement Atlas of Variation shows differences in the amount hospitals pay for everyday items including catheters, gloves and needles. The Atlas aims to help hospitals compare prices and identify where they need to drive down costs, so they can invest instead in frontline care. You can read more Atlases of Variation on the Right Care website.

Musculoskeletal health – a public health approach

Arthritis Research UK is seeking to transform the conversation about musculoskeletal conditions. For too long, the focus has been on the end stages of musculoskeletal disease – treating them when they're at their most severe. We'd like to see a change: promotion of lifelong healthy bones, muscles and joints. We must address how we reduce the risk of developing a musculoskeletal condition, alongside how we reduce the impact of these painful conditions once they've developed. Awareness of the link between healthy lifestyles and musculoskeletal health is low, particularly for people already living with the pain and disability of arthritis or back pain. We ...

Ghostbusters team up with Vasculitis UK at ComicCon

Being involved as a trustee of Vasculitis UK brings a diverse range of experiences.  Vasculitis UK has fantastic fundraisers and fundraising support.  This support comes in all forms; as well as all the wonderful fundraisers who take part in walks, marathons and cycling events, there are other more "unusual" events.  We are sometimes asked to take part in these events and it has involved dressing as pirates for a nautically-themed charity ball, or as witch and wizard for a fundraising Halloween party.  The most unusual was a recent invitation to attend the "Film and Comic Convention" in London - a ...

NOS Conference places and Free Osteoporosis Study

National Osteoporosis Society Conference 2014 The Osteoporosis Conference early bird deadline is Friday 29th August 2014. Register now to take advantage of the discounted rates. www.nos.org.uk/conference With expertise gained over 25 years, the Conference has evolved to offer a high-quality and diverse scientific programme of interest to clinicians, health professionals and basic scientists in the area of bone health. We look forward to welcoming you to Birmingham ICC from 30 Nov – 02 Dec 2014.   FREE osteoporosis study session for health professionals Date: Tuesday 9th September 2014 Time: 12:00 - 17:00 Venue: The Conference Room, The Clare Charity Centre (The Clare Foundation) Wycombe Road, Saunderton Buckinghamshire HP14 4HU To ...

ARMA’s Standards of Care

Arthritis and related musculoskeletal conditions affect one in 5 people in the UK, causing pain and disability.

They can strike at any age, from infancy onwards. They cost society billions each year in health and social costs, lost employment, benefits; and they cost many individuals their independence and quality of life. There are many myths about these conditions, but the most damaging of all is the myth that nothing can be done.

Something can always be done, be it providing details of a local support group, or designing a service which means that people see the right specialist at the right time.

As part of ARMA’s Standards of Care project, a group of people with a range of musculoskeletal conditions has come together to identify what needs to happen in health services to enable them to minimise the pain and disability of arthritis, and to help people remain independent. They have suggested reasonable expectations of care and services for all people with musculoskeletal conditions.

We believe people have a right to:

  • Access to appropriate services for all people with musculoskeletal conditions
  • Timely diagnosis and treatment
  • Information
  • Services which are centered on the needs of users
  • Independence and self-determination

Read more about our overarching principles for the standards of care for people with musculoskeletal conditions.

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